Creating a Brighter Future for Children with Trisomy 13 and Trisomy 18

Brad and Jessi share Faith’s story in this short video.

Mama Bear Care

We’re growing a community of passionate advocates to stand with families facing the unimaginable. Your monthly gift helps us provide fierce love and tender care by:

• Offering personalized support to Mama Bears
• Sustaining vital programs that bring connections and hope
• Expanding our reach to connect with more mothers in need

Not an Automatic Death Sentence

While only fifty percent of babies are born alive, it’s not an automatic death sentence.  Children with this genetic disorder routinely receive intensive treatment.  It’s a serious challenge for any family but God has a plan for every baby conceived.

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Support Organization for Trisomy (SOFT)

Supporting Families, Changing the Narrative

SOFT values education to empower families and professionals through the Trisomy journey. SOFT values and celebrates hope through sharing our stories to celebrate the legacy and value each child brings to their Trisomy journey. SOFT values research, discovery and current knowledge of the science of Trisomy conditions that lay the foundation of treatment and innovative therapies.

SOFT has been empowering families with children diagnosed with Trisomy 18, 13 and related chromosomal disorders for over 40 years.

Hope for Lilliana

Keeping Our Faith

Our journey with our daughter Faith who has Trisomy 18 and how it has affected our faith, family and every day life.

You can follow them on Facebook and on Instagram

There is Hope

Megan Hayes is making history.  She’s the oldest living person in America with a rare genetic condition called Trisomy 18. The doctors say it is incompatible with life.  Megan didn’t get the memo.  She just turned 40.

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Trisomy 18 Survivor

Jennifer found out late in pregnancy her unborn daughter had trisomy eighteen, a genetic condition.  Against the odds, Amber did live and went off to school this month!  She continues to struggle with considerable difficulties, but her happy spirit carries her on.

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Living with Trisomy 18

Trisomy 18 returned to headlines recently as a pregnant Texas woman carrying a child, living with Trisomy 18, fought in the courts to procure an abortion. Thankfully the Texas Supreme Court ruled against the abortion, but sadly Kate Cox traveled out of state to end the life of her baby.

Contrary to much of what you read in the media; Trisomy 18 (T-18) is not an automatic death sentence. It is true that most babies with this condition do not survive, but we are becoming aware of more and more children who do – some into adulthood.

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Trisomy 13 Babies Living Longer

When parents gave birth to a child with trisomy thirteen it used to be the kiss of death and no medical treatment was given.  But a new study published in the American Journal of Medical Genetics looked at the lifespan of these children over a twenty-six-year period.  It found babies with trisomy thirteen still face a difficult future but they’re living longer lives.

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Beverly Jacobson’s  daughter Verity was diagnosed with Edwards syndrome (another name for Trisomy 18)—a condition deemed “incompatible with life”. Despite the medical professionals dire predictions, Verity is now 8 years old and thriving. Having moved from heartache to hope, Beverly has made it her mission to help moms on this journey through her nonprofit ministry, Mama Bear Care.  

Brad and Jesi Smith are speakers for SaveThe1.com standing for all of those who are labeled as exceptions.They have spoken at numerous events for Right to Life groups, crisis pregnancy centers, and churches.  They also actively help parents with disabled children to connect with doctors who support the lives of these precious children.

They are happily married with 5 wonderful children. They have a daughter, Faith who has Trisomy 18 and is 16 years old.